Thursday, May 14, 2009

An Eating Machine

A happy, hungry boy

Outside of a rough night sleeping, Carter settled in to CHOC fairly well today. We did have the same room as our previous stay and Carter got to see a number of familiar faces, specifically the wonderful nurses. We always miss the comforts of home but now have to revert back to “CHOC-mode” for the next few days.

As it turns out, Carter’s fever doesn’t seem to have materialized into anything too worrisome. The doctor’s think the anesthesia from his MRI likely caused the spike in temperature, along with a very lengthy, busy day. Carter’s temperature settled to normal levels throughout the night and his initial blood work had nothing abnormal. We’ll wait for a few blood cultures to be certain but the preliminary plan is to move forward with Round 2 of chemotherapy tomorrow. Last night we were very concerned about the potentials of an infection and having to put off chemo for a few days. This does not seem to be the case and we’ll continue with our road map of chemotherapy. We do continue to battle a form of rash around Carter's Broviac site. Over the past couple of weeks, we’ve been trying to adjust some medicines, add ointments, use alternative tapes and cleanser but have been unable to nail down a true cause. Fortunately, this rash seems to have nothing to do with Carter’s chemotherapy regimen but it’s a little irritated and itchy for Carter at times. We’ll continue to try to solve the rash mystery in hopes of a solution.

Big news…Carter was an amazing eater today! He had such an incredible appetite and probably ate more today than his entire stay at CHOC during our first visit. Here’s the breakdown of all the things he nibbled on today: pancakes, fruit loops, mac & cheese, pizza, chocolate cookie, oranges, hamburger, french fries, yogurt and lots of water. We were thrilled! We are hoping our next round of chemo will not slow his appetite as it did during the beginning of Round 1. Luckily we haven’t had any further discussion about the NG tube (feeding tube straight through the nostril into the stomach) and frankly, maybe Carter finally got wind of what a bummer it would be to have this hanging from his nose…

6 comments:

  1. Praise God, Praise God, Praise God for the fever leaving and the appetite returning! Perhaps he did get wind of what a bummer the tube would have been. Such wonderful news. Keeping you all before the throne of Grace. Hugs

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  2. May God heal your precious son, Carter. I found you from a friend on FB. Thank you for sharing his story with us.

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  3. Yayyyyyyy! So excited that Carter's appetite came back. Love the popsicle picture of him. We are sending lots of prayers for this next round of chemo to go REALLY well! Sending our love,

    Courtney and Charlie

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  4. Great news on the eating! Yipeee. :0) Celebrate the small triumphs!
    xo Stephanie

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  5. He looks great! I hope he continues to eat so well throughout this stay adn that its a short one for you all

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  6. Kara & Matt,
    This photo says it all….beautiful smile & bright eyes. Thank you for allowing us to follow your journey with Carter as he marches on day by day. Your diligence & dedication to learning all you can about Carter’s disease and sharing your experiences is truly appreciated. Each time he returns home he will receive the best medicine, his “big” brother Bennett!
    Love, Cathy Sukiasian

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