Monday, August 10, 2009

More pain meds, please?!

Carter enjoying a popsicle

Carter's battle wounds

Well, Carter had a rough night last night. He was up every 45 minutes throughout the entire night. He was so alert and awake all day yesterday, so we thought he'd be exhausted. As soon as I'd sing to him and rub his arm or leg to get him to sleep, I'd crawl back in bed and he'd wake up 15-20 minutes later. This happened all night long. We knew they had reduced his pain meds and switched us to a pain med we give Carter at home on an as-needed basis. However, even at home the dosage has been twice as much. He just had a liver transplant, there should be pain associated with it!! We'd rather not wait for him to tell us he's hurting and stay ahead of the pain. Some of the nurses have disagreed and it's been kind of frustrating. Also, the steroids he is on are currently at the highest dosage. This is the only anti-rejection he has for now. They will decrease each day for the next 7 days, then we will be at the level he will go home on. A side effect of these steroids is trouble sleeping. So, the lack of sleep last night could be a combination of this and some pain. We are trying to advocate for Carter to get the pain under control, and they will give him some Benadryl tonight which will hopefully help him sleep better.

Otherwise, he continues to impress everyone. Today they took off his surgery bandages and Matt and I finally got to see the infamous liver transplant scar (picture a big peace sign, minus the circle around it). Carter also had his oxygen in his nose removed and one of the drainage tubes on his side. He still has one drainage tube on the other side and an ng tube in. They will continue to keep these in for the next few days. The head surgeon checked on Carter this morning, as Carter was begging for waffles or cinnamon toast. He told us he can start him on a clear diet today. So, an hour later a popsicle was brought in for him. Carter devoured it! When the rest of the transplant team got word of this they couldn't believe Carter ate something already. They reminding us he needs to take it slow, but they would never step on the toes of THE surgeon's call either. Carter has been doing so great they moved us out of ICU and onto the pediatric floor. This room is pretty private and much more quiet. We're hoping it is a bit more restful!

Matt and I also wanted to welcome our new nephew into the world! Matt's sister, Tracy, and her husband Tony had a VERY healthy 10 pound 9 ounce baby today!!...naturally! You are a superstar Trac!! Sorry, we've borrowed Grandma from you during this crazy time. Thanks for sharing her. We love you all and congrats!!

11 comments:

  1. WOW - Carter looks so calm, even with all of the tubes and bandages! It's so great to hear he is recovering so well according to THE doctor, too! He is an inspiration to everyone!
    Congrats, Tracy, on Baby #3 - you are amazing, too!
    XOXO,
    Shan

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  2. That is great news.....he is eating. He looks great. Your sister in law has some big babies!!! WE are praying for you and wish you the best!
    Brooke

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  3. Food...we want food! Poor little guy hasn't eaten in days but wanting something to eat is a great sign. We are stunned to hear he is out of ICU already...the news just keeps getting better. The "roids" have probably jacked him up a bit so hopefully the benadryl will let him sleep...too bad you are pregnant otherwise you could take a hit too! Let's hope everyone gets a good nights sleep and Carter can have some pudding or something tomorrow. Yipppeee for Carter Kipp! Big hugs and Kara keep your feet up...don't need baby brother to come yet! xoxo Cindy and John

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  4. SO happy to hear that things are going so well for Carter this soon after transplant surgery! He is one lucky boy to be out of ICU so soon! He will be home eating chicken hummus and pita sooner than you know it! Keeping your family in our thoughts and wishing your little man a smooth road ahead!
    Love Lesley "Taylor" Bailey and Family

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  5. Wonderful that Carter was given alittle something to eat. Wonderful that he also received a new baby cousin. Big love and hugs, Julie Weaver

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  6. We are so happy things are going so well! We knew Carter would move right along after this as he is such a trooper! Still sending our prayers for a smooth recovery ahead. We always look forward to reading about his fantastic progress...thank you!!
    Shelley H.

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  7. Wow...just read the whole blog from beginning to end. What a miracle you have, and what an answer to prayer! Thank you for sharing your story with the world. It is a testimony of God's grace and provision in a world full of infection and disease. I don't know you but will continue to pray for your family. Boys! What fun! (I have four of them! :) )

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  8. Seriously Carter...you're starting to make the rest of us slackers look bad! You are such a little stud! I have to tell you...you help me everyday get through something I'd really rather not do. Knowing you are fighting this hard and doing this well, makes me silence my excuses and JUST DO IT! Who knew I could learn so much from a 2 year old? Thanks buddy. I owe you.

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  9. Yay!!! Carter continues to look great, amazing that he wants to eat. We'll keep coming for more of the fantastic same results. Congrats on your new nephew too, how fun that you'll have your own little one soon and they'll all grow up together/same age.

    Congrats!

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  10. Ditto to what Erin said! Wow, out of the ICU so fast...thank you so much for sharing this with us. We have learned so much more about courage, love, support, the power of prayer, God's healing touch and the power of family and friends.
    Can't wait to see pics of Carter and Bennett playing in the backyard with new little brother close by. Here's to a better night sleep for all!

    Love, Jan and Jack

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  11. Praise God, Praise God, Praise God!!! Thank You Father for Carter's incredible recovery!!! Father You are ever faithful to Your beloved children.

    Thank you Carter for being such a tough young warrior. When my day seems hard, I remember you and your family and what each of you have gone through and the leg of the journey still yet conquered..and it will be conquered in the mighty name of Jesus! You each are an inspiration of faith. Keep on keeping on as my granny would say. Keep on believing for I am believing, praying and praising. This whole journey is a testimony to the Goodness of God!!! Many gentle hugs, many prayers of praise, many more blessings!

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