Thursday, August 13, 2009

Post-transplant ups and downs

Carter munching on Cheerios

Carter loved being out of bed with Mom

Last night everyone slept a little better. The nurse felt so bad from the night before, I think she put the IV pump alarms on silent. Carter just woke up a few times while they took his vitals.

In the morning, we ordered Cheerios for Carter. You have never seen someone so excited to eat. As he was putting his hand to his mouth with some Cheerios, his hand was shaking. Poor guy! Today he ate almost two little boxes of Cheerios and a tiny bit of quesadilla (mostly the tortilla). Earlier in the day he was telling jokes and laughing and it was the most like himself he has been since surgery. Matt and I were so happy.

As the day went on, we became more concerned about Carter's heart rate. It started to go up last night while he was sleeping, and continued throughout the day. Post-transplant, his heart rate has been between 90-100. And today it was between 135-185. During his nap (in a restful state), his heart rate was 140. Also, some of Carter's liver enzyme levels have been up (which is not good). If they are up again tomorrow, the doctors will do an ultrasound. We're hoping they will trend downward. We cannot have Carter's body reject this liver!! Think good thoughts!! They told us this process was a roller-coaster, and I guess we have just been spoiled so far. He's been doing great, we just need that to continue!

To end on a good note, Carter had his first poop this evening since he has been eating solid foods! This is a big deal. It was all processed in this new organ and worked it's way through his re-routed intestine. I'm staying at my aunt and uncle's tonight and Matt texted me from the hospital to tell me. He said he has never been more excited to change a diaper! Yeah Carter!

7 comments:

  1. You go Carter. Your mom always did love a good "poop" talk. Ha Ha. You guys are great. Keep up the good spirits. Everyone is just thinking and praying for you all. Get some sleep tonight and get that heart rate down.
    ITB,
    Jody

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  2. Yup, the importance of the "poop"...especially after a liver transplant. Hoping and praying heart rate and liver enzymes all go down. Big love and hugs to all of you, Julie Weaver

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  3. Cheerios and poop! Hooray. That's pretty big stuff. We are praying that Carter's body embraces this liver and is just working out the initial kinks. All will turn out fine, it just may be like you said, a few ups and downs at the start. He is amazing! Lots of love to you guys. Daralyn

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  4. Love these pictures...holding your little guy. He looks very content and peaceful. Thank goodness he can finally eat something. Great news about the pooping...amazing really when you think about it. The Doctors did say there will be some ups and downs so the heart rate and liver elevations are just bumps because this liver seems very happy in Carter! Hope Matt had a good night with Carter and you had a restful night also. Praying and thinking of all of you constantly. Big hugs xoxo Cindy and John

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  5. GO Carter. I hope that his heart rate comes down and his liver enzymes as well. What big stuff he is doing. Praying for you and your family!
    Brooke

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  6. So great to see Carter out of bed and eating Cheerios! Hope that his heartrate goes down or already has gone down. Keep fighting, Carter - you are on the final leg of beating this cancer!
    XOXO,
    Shan

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  7. Praise God Carter finally got some real food!!! Praise God again that he pooped. Father make this new liver one with Carter's body. Let it function normally without complications in the mighty name of Jesus. Return Carter's heart rate & blood pressure to normal healthy levels in the mighty name of Jesus. I thank You Father for the progress Carter has made and I praise You and thank You for the completion of Carter's healing. You are awesome Daddy!

    Way to go Carter!! You keep on keeping on honey!!! Many gentle hugs, many more blessings!!

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