Friday, August 14, 2009

One week post-transplant!


Dad had a good night with Carter and Mom slept well away from the hospital. Thanks for staying with me again Court!

Pretty early in the morning we found out Carter's liver levels were about the same. One was slightly higher and one was slightly lower. His heart rate was and continues to be pretty high. Also, his white blood cell count has gone up a bit. We continue to not have answers as to why any of this is happening, it's just part of the process we guess. Carter was tested today for a UTI (which can be common after having a catheter), this could explain his white blood cell count being elevated. He is also anemic right now, which could explain the high heart rate. These are all guesses. There could be a million different things going on. The doctors are hesitant to do a blood transfusion (which would help the anemia) because new blood would be thicker and they are trying to keep Carter's blood thin to prevent any clotting in these early days. It's all a balancing act. Carter did have an ultrasound today and two of the surgeons happened to come in during the ultrasound. They thought things looked good and it is most likely not a vascular issue. They are increasing one of the anti-rejection drugs (Prograf) tonight. We'll see tomorrow morning if this affects his liver levels. It's all concerning and the doctors are not discounting any of it, but they also continue to call Carter their "rock star" patient. Matt and I have always thought he was pretty incredible! But this is definitely stressful for us! Luckily, we have each other to talk down if one of us starts getting worked up and upset. We can't wait to be over this bump in the road!!

Bennett and Carter talked on the phone today. Bennett was home going through a Halloween catalog (his obsession this time of year). He was telling Carter he was going to be Batman and Carter was going to be Handy Manny. Carter was saying he wanted to be Mickey Mouse or a spoon. Bennett thought this was so funny, then Carter started cracking up saying he was going to be a spoon for Halloween. This conversation and laughing went on for several minutes. It was so cute, I wish I had a video camera!

The doctors reminded us today that Carter is extremely immunosuppressed. They said we should limit visitors to immediate family. We have had requests from so many friends to visit, and we would love to see all of you...however, we're going to have to hold off right now. We miss seeing everyone though!! Hopefully, we'll get to see you soon!

9 comments:

  1. Carter is SUCH a rock-star and its good to hear that the doctors think so also! I love that the boys talked on the phone today...too cute...I'm sure they both can't wait to be back together more regularly. Carter would be the cutest 'spoon' ever! Hopefully this bump in the road is figured out soon, and his counts go down this weekend.
    Lots of love,
    Shan

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  2. Carter's big blue eyes,adorable smile and the blue spoon make my heart melt! I love his obsession with utensils! Very cute...
    I am sure this is still a scary time for you as you sit and wait...and wonder...but in no time at all, Carter will be running all through the house being his normal toddler self again! It is amazing what is capable of the human body--with all the love, prayers and support, this liver has no choice but to flourish inside Carter's little body! Wishing sweet dreams tonight.
    Sincerely,
    Andrea Pieretti

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  3. Good morning Matt and Kara- Love Carter's big smile...what a little miracle boy. To think that you raced up to UCLA only a week ago. Amazing...God is good! I am sure it is beyond nerve wracking with the heart rate and the liver count but hang on...his coloring looks so good I can't believe he is anemic. All so spooky but it will be OK. I LOVE that Bennett is already in Halloween mode...I was seriously thinking about getting out all my fall stuff including my fake pumpkin but I thought I better wait until September. Love the Fall and it always feels like a new beginning...it's the old teacher in me. I like to think about Carter and by Thanksgiving he should be done with his chemo and his hair will start growing back in...a new baby might be sleeping through the night and ahhhhh life will just be like it should be...wild but normal!!! Hang on guys...it is going to be OK. A little guy with a smile like that just can't be sick. Big hugs...xoxo Cindy and John

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  4. He MUST be a spoon for Halloween!
    Auntie

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  5. Carter's sweet smile says it all. Hang in there! Halloween and a spoon costume will be here before you know it. All you need is a fork stitched onto a onesie for the baby and your look will be complete. -Cara & Jerry

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  6. He looks so good! That is hysterical about the spoon for Halloween conversation between the boys. I would have loved to have heard it!! You guys are doing so well staying strong and the doctors will figure all the little "bumps" out soon enough and you'll be on your way. He truly is a "rock star" patient!! So glad you were able to get some more rest last night and hopefully things will straighten out today. We are still sending our prayers for a smooth recovery. Megan was talking about Carter last night in the car...she wanted to see him and say "hello". It was so cute! We turned on the computer and visited Carter's pictures so let him know Megan is talking about him and praying for him too!
    take care,
    Shelley

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  7. Carter is a total "rock star!" We have all our friends and our church here in Scottsdale praying for Carter and you guys. Hang in there! Praying for your nerves, his liver count, heart rate, immune system and that his new liver gets acclimated to his body. He's such a fighter!

    ITB,
    Heather (Sheptenko) Terveen

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  8. Love the story about the boys talking...maybe Carter can be Hanny Manny with spoons! Kara, you and Matt are such advocates for Carter, you are also major "ROCK STARS". Special hugs for Bennett and soft hugs for Carter.

    Love,
    Jan and Jack

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  9. Thanks for the update. I kept checking the blog all day yesterday (Saturday) while doing my house work. You all were on my mind and in my prayers as I cleaned. Carter surely looks well...his little arm looks like he is starting to gain a bit of the weight back. As for the anemia, I wouldn't be too surprised by it....after all for the past week the little guy hasn't had much to eat. Anemia is a lack of iron in the system, God can turn it around as well as the enzyme levels, heart rate, etc. Carter is definitely God's little miracle! Next time the docs come in and seem amazed, let them know it is a God thing....that the glow about Carter is the presence of the Almighty.

    Jehovah Raphe (God of Carter's healing) continue to keep Your mighty hands working in and through Carter. Keep manifesting Carter's healing before many in the world. Let Your goodness & provision shine through this blog to touch the nations. But most importantly Father, let Your presence shine brightly in and through this family to touch many in that hospital and in their community. Keep the windows of heaven open above this family. Continue to shower down blessings of health, wealth, & joy. Thank You Father for Your angels You have stationed with Carter & his family. Continue on dear angels singing songs of deliverance, strength & healing over, in & through this family in Jesus' mighty name.

    Still dancing and praising before God's throne of grace. It is early Sunday morning and I will be sure to take this report to CWL so they can join me in dancing & praising. Praying you can feel us rejoicing with you today! Many gentle hugs & many more blessings!

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